The Words Beneath My Fingertips

 It's been a long time since I've blogged. I finally have a reason now.  I, again, had a bad experience with a GI (link to that entry on the word 'again'- note I was in pain and 10 years younger, so forgive my angrybadgrammar and fightingwords).  Fast forward to 2022. Complainblogging!  My favorite thing to do when I feel wronged. Just look at some of my earlier blog history, particularly in 2011 :) or maybe not. :-X For context: Throughout the spring and summer of 2021, I had excruciating pain from my head down to my throat (right side) that affected my ear and my tongue. Talking was difficult without pain. I had a lot of tests done with zero answers. My onc thought it could be trigeminal neuralgia, my neurologist didn't (and doesn't) think so but treats me for it anyway (usually does this to prove him right if it doesn't work- he's that kind of doctor). The medication he prescribed over the summer was an XR nerve pain medication. A couple of months la

 Late August /early September 2010 was a huge milestone for me. I had survived one year being cancer free after a huge struggle to recover from my cancer-curative-partial gastrectomy surgery (as you all know, I had the rest of my stomach removed in 2019) . My partial gastrectomy recovery was ROUGH. I spent 5 months essentially starving as my esophagus did not work. My face spent more time in the toilet than with friends if the visit had anything to do with food. Meanwhile, though, I still somehow got into grad school. But as I recovered, my friend suddenly deteriorated. And then she was diagnosed with lung cancer. And then she died. Her name was Jennifer Wille, but after college, she went by her pen name Zellie Blake. She was 27 years young. Zellie was a free spirit. She was funny. She was creative. She was happy. She was silly. She was tall 😊 (approximately a foot taller than me- in college I called her my “Foot Taller JenTwin).  She had a child-like innocence. She never stopped pl

I can't believe it's been 4 months since surgery (and 101 days since being discharged!) How has my life changed? 1. I lost 10 pounds. Gained 5. But I still look like I lost 10. I can still wear my work pants but with a braided belt as tight as it can go. And I now buy XXXSP shirts and dresses instead of XXSP :) I can probably  fit in 000P pants instead of 00P but trying to hold off :X 2. I eat better than I ever had before. This is because I don't suffer with reflux anymore 3. I am actually hungry now. I had to force myself to eat one meal before. I have several alarms throughout the day to remind myself to eat (I get busy at work!). I take in more calories now than I ever did before. I am also less cold because I take in more calories. HA. 4. Since my trip to the ICU (lung collapse on left lung, clot on right lung), I now give myself daily lovenox (blood thinning) injections. I continue this until September. 5. I have fewer dietary restrictions now than before comp

JENNIFER THE SOVEREIGN , LLC February 24, 2019 RE: EVICTION NOTICE Stomach, It is recognized that you have been a 35 year tenant for PROPERTY OWNER. Your presence allowed PROPERTY OWNER to grow (albeit not that much, but GENETICS is more at fault), enjoy the sensation of full belly after eating delicious meals, and being an active member of the DIGESTIVE CO-OP. However, you have since become HOSTILE and UNCOOPERATIVE. PROPERTY OWNER has listed the following grievances: Grievance: WHEREAS in 2009 you invited Cancer to sublet on your top apartment near the GE Junction Attic causing LOSS OF PROPERTY/IRREPARABLE DAMAGE/ in surrounding area WHEREAS since 2009 your egregious party antics has wrecked havoc on your upper neighbor ESPHOAGUS causing IRREPARABLE DAMAGE to property which can cause FUTURE HARM to OWNER OF PROPERTY (and HOSTILE LIVING ENVIRONMENT) WHERAS since 2009 the consequences of your antics has caused problems to other neighbors such as LIVER, LUNGS, TE

Hi readers! It has been a long time since I have posted about my health. Here is a life update filled with pictures and videos.  But now it's time to get real. On February 25, I am saying goodbye to my stomach. It was actually supposed to be June 25 of this past year (2018). I was all ready! See this was in March!!! ((Had CT because I was experiencing discomfort in my upper right quadrant, and he wanted to be sure my gallbladder wasn't an issue. It wasn't. Good thing or I would  be getting that removed,too!I guess it's still a possibility in case opening me up shows something different)) With my handmade stomach, made by my ex-flatty from college Before this could even be decided (the June 25 date), I had to have a pelvic laparoscopy to address my tumor pain to be sure nothing was there. Feb 2018 was the lap. Aside from a random surgical staple, probably from my C section, nothing was noteworthy and date was finalized. Leave was approved. Everything

I cannot believe it has been a little over TWO YEARS since I have written in this blog. Working full time and parenting has been a bit crazy... And while I created this blog years and years ago to address the journey of figuring out why I was in so much pain, thus becoming more of a blog about Neurofibromatosis, my life has actually now been more centered in surviving my stomach cancer surgery. (As per my last major blog discussing my medical life and my eating disorder ). There is so much to say but since I prefer this to be a chronicle of my life, I will go back in time to explain the happenings: I confess that I have not done so much about my eating disorder other than recognizing that I have one. I think coming to terms with it has helped though. But I think as time went on, things about life just got better? While I struggle sometimes still with finding time to eat, when I do eat, I eat more. I have been working HARD and SUCCEEDING with gaining weight, so that's great!