The Words Beneath My Fingertips

I wrote an extremely long post in early February, filled with pictures, etc. But then for SOME reason, it did not post. Since then, I have been too busy being a mom to rewrite it. Fast Forward to JULY - finally time for an update! I added a page to my blog, which has pictures of my new outer fibromas across my back and belly. If interested, it is here . Without going in excruciating detail, here is the 411 on the rest of my pregnancy (which was a pretty fabulous pregnancy until the end). 1. New fibromas grew 2. My facial tumor swelled, leaving me in indescribable pain. I could barely speak and had to keep cold compresses on my face. 3. What I thought was my baby's foot constantly in my right in my rib cage ended up being a swollen liver.  I had HELLP syndrome! (only from elevated LFTs- they were at 220 when the normal range is 30-40!   in my last entry in October, I was explaining one of the effects of NF on pregnancy is preeclampsia. I left you last with being ...

Hello to my few but loyal readers. This blog will be long but worth it if you are thinking of having a baby and not quite sure what to expect. Well, at least I hope it's worth it! Please note- most of this stems from MY experience- I do not claim to be the voice of all pregnant women with NF. For those who follow me on Facebook you have been following my pregnancy. To the few who just catch my blog between entries- well, I'm pregnant! And it's a BOY! I actually knew when I wrote my last blog about the wellness group (back in July) but I was waiting until I was 13 weeks before saying anything. All is well so far. Here are my ultrasound pictures to date: (note- the ONLY good thing about being high risk is the # of ultrasounds haha) 6 Weeks! 11 weeks! 13 weeks! 20 weeks, 3D image of his cute face! 24 weeks! For those who do not know, when a parent has NF, there is a 50% chance to pass that gene to their children. I've known and understoo...