I have an optical glioma with atrophy (a benign brain tumor that is very very slowly eating my optic nerve), so I see a neuro-ophthalmologist every year just so my vision can be monitored. It will be very unlikely I'll lose more vision than I already have, which is a good thing, but it is good to be kept monitored just in case! Anyway, my eyes also reveal a very common characteristic of NF1- Lisch nodules. These nodules are basically raised freckles. Every time I see my N-O, he brings in residents just so they can look at my eyes(and so they can oooh and aaahh) . For as long as he's been a N-O (which is at LEAST 30 years and he's really really really respected in his field- one of the top N-Os in the country), I have the most lisch nodules he's ever seen. I guess that makes me pretty cool! The picture of my eye shows my nodules. They can be easily seen with a flashlight or in direct sunlight. This is my right eye. My left eye actually has MORE nodules! (My righ...
The life of a wife, a mother, a whovian, a stomach cancer survivor and NF1 endurer. My health, my stories, my life.