It has been over two months since I last updated! First of all I have to say that I am feeling MUCH better now than I was when I wrote an entry. That was one HELL of a pain spell. It didn't go away for a month. It was hell. And Narcotics gut is definitely also hell. But I gotta do what I gotta do. Haven't needed to take any for a long time, so maybe that spell bought me some pain free time haha. When I do have pain though (it doesn't last so long), it centers on one new area only. A little concerned about that, but we'll see what happens... I have headaches off and on which are similar to headaches I had when my facial plexiform grew. When I cough or open my mouth wide, I feel a strain on my head right above my temple. This is where my skull has been 'facelifted' from the plexiform. It's a little disconcerting. My next brain MRI isn't until December. I joined an NF support group. It only meets for a month. My doctor wanted me to do it. It's...
The life of a wife, a mother, a whovian, a stomach cancer survivor and NF1 endurer. My health, my stories, my life.