The Words Beneath My Fingertips

In case you are interested, I posted an entry following up from my blog in OCTOBER regarding NF's effect on my pregnancy. It is here . This entry is being dedicated to my 6th month as a MOM. For those who have spoken to me in the past about having kids, many of you know that I didn't think I wanted to have biological children. I thought about this for two main reasons: 1. I have NF 2. I had CANCER. I didn't think my body could be healthy enough. I was afraid to birth a genetic mutant like myself. I was just afraid of everything. Well, I changed my mind. And I did so for several reasons but the main reason was that I really wanted to have the experience of being pregnant and having a child of my own. Other reasons included: despite my pain, despite my cancer history, I still have a great life. If I  have a great life, my child would have a great life. I'm not sorry to be alive, so why would my child if he happens to have NF? (or any other condition). His life w...

I wrote an extremely long post in early February, filled with pictures, etc. But then for SOME reason, it did not post. Since then, I have been too busy being a mom to rewrite it. Fast Forward to JULY - finally time for an update! I added a page to my blog, which has pictures of my new outer fibromas across my back and belly. If interested, it is here . Without going in excruciating detail, here is the 411 on the rest of my pregnancy (which was a pretty fabulous pregnancy until the end). 1. New fibromas grew 2. My facial tumor swelled, leaving me in indescribable pain. I could barely speak and had to keep cold compresses on my face. 3. What I thought was my baby's foot constantly in my right in my rib cage ended up being a swollen liver.  I had HELLP syndrome! (only from elevated LFTs- they were at 220 when the normal range is 30-40!   in my last entry in October, I was explaining one of the effects of NF on pregnancy is preeclampsia. I left you last with being ...