I have an optical glioma with atrophy (a benign brain tumor that is very very slowly eating my optic nerve), so I see a neuro-ophthalmologist every year just so my vision can be monitored. It will be very unlikely I'll lose more vision than I already have, which is a good thing, but it is good to be kept monitored just in case! Anyway, my eyes also reveal a very common characteristic of NF1- Lisch nodules. These nodules are basically raised freckles.
Every time I see my N-O, he brings in residents just so they can look at my eyes(and so they can oooh and aaahh) . For as long as he's been a N-O (which is at LEAST 30 years and he's really really really respected in his field- one of the top N-Os in the country), I have the most lisch nodules he's ever seen. I guess that makes me pretty cool!
The picture of my eye shows my nodules. They can be easily seen with a flashlight or in direct sunlight.
This is my right eye. My left eye actually has MORE nodules! (My right eye is the eye affected by by brain tumor, so I would think my right eye would have more nodules). --edit July 31, 2012-- I am now remembering a lesson in my biology class (and I believe I learned this in psychology too) that the left side of the brain affects the right side of the body and vice versa- so maybe that's why my left eye has more nodules! end edit---
Anyway, just a fun tibdbit to post! One of the only parts of my disorder that DOESN'T hurt me :-P
Every time I see my N-O, he brings in residents just so they can look at my eyes(and so they can oooh and aaahh) . For as long as he's been a N-O (which is at LEAST 30 years and he's really really really respected in his field- one of the top N-Os in the country), I have the most lisch nodules he's ever seen. I guess that makes me pretty cool!
The picture of my eye shows my nodules. They can be easily seen with a flashlight or in direct sunlight.
Anyway, just a fun tibdbit to post! One of the only parts of my disorder that DOESN'T hurt me :-P
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