New username, plus update

I don't know if it affects anything or not but I changed my username/url. doing my best to really gear this toward NF so hoooopefully people with NF can find this.

And as an update to my previous blog, I was in pretty bad pain most of the day, and it got worse once i got home. Even though tylenol did nothing for me all day long, it's finally working now and my life is back. FOR NOW.

so if it's not nerve pain, it's this pain. thus is my life.

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Pain Management and How Much I Hate My Gastroenterologist.

So I finally met my pain management team today. The "team" consists of a pain psychologist and a pain physiologist. The appointment was set up a few months ago and it was great to finally see them today. Pain psychologist is really nice but WAY too touchy feely for me- don't know how to explain it but maybe it's just jarring to have a doctor other than my primary care doctor to actually react to the pain I've been describing. I've felt like I've been psychotic all these years. i'm finally vindicated. Well, I felt vindicated when I wrote my first entries of this blog. But YEAH. Anyway I need pain management because the pain comes and goes at random times and stays for ranodm amounts of time and the pain is intense... I mean really intense.I've been in a 'spat' for the last few days, so I'm happy I actually saw the pain doctor when I felt the pain- I usually see my doctors before the pain starts or after a bad spat. Never during. so hu...

Incredibly Thankful

Dear Everyone: Your response to my "confession" blog was, for lack of a better word, overwhelming. The stories you shared with me via your comments or in private... they mean more to me than I can describe. It was very hard to "come out" as someone with an eating disorder. Anyway. I'm working through it. And I'm so grateful to have so much support. So I want to dedicate my extremely, overly sappy Thanksgiving blog to all of you, my readers, my family and my friends. To my family/(including extended and John's family): Thank you for being you. I know we Higginses have gotten stronger with the loss of Jimmy. It still hurts. We all still hurt. But we are stronger together. I know we don't always get along, but we are always family. And especially to my siblings- you all mean so much to me. I cherish you and each of you inspire me in different ways. Anyway, I always reflect back on the fun times we've had and I know we'll make fun memories...

And my sutured stomach has slipped...

I haven't written an update post in FOREVER. I've just had no time. Between school work, studying for Comps and more school work and applying for jobs...yeah. Now that school work is dwindling, my comps are over (and I passed!), I can write this long overdue blog about my GD esophagus.Not NF related, sure, but I am perpetually recovering from stomach cancer surgery, so yeah. Anyway, I've had problem swallowing since maybe February. Well, ha, I've had problems swallowing since my damn cancer surgery, but it got worse. So did my heartburn. I was worried. So I had an endoscopy in the beginning of March. This photo below is BASICALLY what I had done in 2009- after part of my stomach/esophagus/GE junction were removed, they fundoplicated it back together: It's not exactly like this because in this photo, the IN TACT stomach was wrapped against an IN TACT junction/esophagus. They took what was left of my stomach and wrapped it around what was left of my esophagu...

The Words Beneath My Fingertips

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