New username, plus update

I don't know if it affects anything or not but I changed my username/url. doing my best to really gear this toward NF so hoooopefully people with NF can find this.

And as an update to my previous blog, I was in pretty bad pain most of the day, and it got worse once i got home. Even though tylenol did nothing for me all day long, it's finally working now and my life is back. FOR NOW.

so if it's not nerve pain, it's this pain. thus is my life.

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On Saying Goodbye: Leaving Boston after 17 Years

Dear Boston and all the people who have been in our lives: Thank you for the (just shy of!) 17 Years! What a beautiful city this is. It was such a privilege to call Boston home. You were worst of times (cancer, other health issues, losing Chaucer and Dante, job losses/ unemployments on both ends) but you were mostly the best of times (meeting the best people, having Oliver, completing advanced degrees, advancing in our careers, growing as people). You quite literally saved my life.. While some memories are quite triggering, they are reminders of strength and perseverance. And I am filled with thanks having been in the right place at the right time . Now here comes a waterfall of photos Us in our early days here, circa 2008 Our graduations from Boston College in 2012 and 13 respectively (I was pregnant and didn’t yet know in this pic!) Oliver’s birth in 2014 When i first moved here, I was not city savvy. I was not public transit savvy. And I HATED the cold and snow. 17...

My Stomach Cancer Survivor Confessions

November is Stomach Cancer Awareness month, so I thought I should write something about how I still deal with the effects--- 7 years later. So, friends, here, on this blog, I am telling all of you for the first time (because I have recently been reflecting on it and only now owning up to this- I haven't even discussed with my therapist but I will)....I am almost certain I have a stomach cancer induced eating disorder. This will be VERY LONG so bear with me, and if you read it, I appreciate you! I have been working on this post for DAYS and I don't know how it's going to be perceived, so I am making myself very vulnerable to you right now. I can't really write about my self-diagnosed eating disorder without explaining again everything I endured when I was recovering from surgery. I know many of you remember my trials and tribulations of eating and all I went through, but many don't know because I have recently met you, so here is my story. I think ...

Liz, my hero

My best friend/sister-from-another-mister, Liz, ran, for the second year in a row, on behalf of me in the CTF Cupid's Undie Run in DC. She raised almost $1,300 for NF research! This was her last year, in mid run: She flew us down to DC so we could see her run this year <3 I wanted to get her crossing the finish line- it was all sort of confusing and fast. And I failed. But this was her with "Teddy Roosevelt" And with me and me again! A lot of tourists took this photo too. We're pretty famous now. We are going to run with her next year! (yes, that means John, too!) I thought I took a video of the entire start of the race, but I never hit 'record'. I only have the last 11 seconds of it. Double fail. So the first part of the video is the last 11 seconds of the start of the race, and then a few seconds of the commotion AFTER the race: And so everybody knows: Liz is one of the most beautiful and generous people I ...

The Words Beneath My Fingertips

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