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Support for NF

You know, having NF is really isolating. Other than my mom and brother, I have nobody to really share this with. Of course, you guys (my friends) are amazing at supporting me, helping me feel better when i am in pain, but I'd really like to talk to more people who have this disorder. I have joined many FB groups, and I am hoping when I am not so busy with classes that I can meet up with some people. I recently joined a blog that a high school pal introduced me to. Her friend has NF2 and is working on a literary magazine promoting the cure for NF. She does tons of races (she's pretty amazing) for NF fundraising. My best friend ran in honor of me in the NF Cupid Undie Run  - I wish I could do it! Maybe I'll start running. Who knows.

Anyway, I want to know what makes YOU feel isolated?

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