Before my surgery, I told my surgeon (if you recall from that entry) that I had pain on my right side, too,and he pretty much told me that he wouldn't do anything about it. (I then thought in a later post that the PET did in fact pick up a tumor on my right side, a tumor I didn' t know about and thought that was the reason for my right side pain, but i didn't read the PET report correctly and what was picked up was Rosie, an outer fibroma [which is pretty big] NOT an inner tumor)
Anyway, I was also told that this pain was referred pain from the left side tumor and it would go away after surgery.
IT HAS NOT.
In fact the pain on my right side is worse than it has ever been before. Going on ONE WEEK STRAIGHT of pain. I am SO glad I have leftover oxycodone from my surgery recovery (i didn't really use it for recovery- so I have a whole prescription- well not anymore since I've been using it all week ahha). It MOSTLY works- much better than any OTC would help me. The other day though, I went to bed with 2 oxys and an ambien (very safe- doctor approved- my sleep schedule has been thrown off for some reason, part of it was from coughing my lungs out all night, but I don't know why I kept staying up after the cough got mostly better). and 4 hrs later I woke up in worse pain! Then I was up all night long (painless thanks to the oxy, but for some reason the ambien wore out).
If I press deep down on my skin, the muscle around my bone is VERY sensitive and it hurts to press down on it. It hurts from the top right side of my pelvic bone, across and down my groin area (sorry if that's TMI) and sometimes down my right thigh (on the front side) and SOMETIMES it extends to my right lowr back area. But it usually stays focused on that pelvic bone area!
I'm writing lots of asides in ( ) so I hope I'm making sense.
Anyway, the pain is so bad I can't concentrate. I'm really worried. The left side pain was the same for years and years before anything was found on a scan. how long do I have to go t hrough this before any doctor SEES something? :,(
I see my NF doc on the 13th (or something like that) so I hope he can help me. BUT I DOUBT IT. Even if he, or my wonderful primary care doctor were to order an MRI , nothing would show up (I mean I just had a PET/CT in August which included that area) and I'd waste everybody's time (now that I'm in school, MYYY time is more valuable than theirs, I'll have to say. I can't afford time wasted until this semester is OVER).
I'm really freaking out because if this gets worse and worse, I 1) will have to be on something like oxycodone more regularly, and I don't know if doctors will let me! and 2) COMPS ARE IN MARCH and if I have a pain spell that particular weekend I AM SCREWED.
I thought this would be over after surgery- so much for THAT. Thankfully the area that ALMOST killed me with pain IS IN FACT GONE (I sometimes get a dull pain spell)
and the nerve damage pain I had from my surgery recovery has SO FAR disappeared- I haven't taken gabapentin in a week and I haven't felt any burning pins/needles sensation! I wonder if I can really stop that medication for good!
But blah to my right pelvis!
Anyway, I was also told that this pain was referred pain from the left side tumor and it would go away after surgery.
IT HAS NOT.
In fact the pain on my right side is worse than it has ever been before. Going on ONE WEEK STRAIGHT of pain. I am SO glad I have leftover oxycodone from my surgery recovery (i didn't really use it for recovery- so I have a whole prescription- well not anymore since I've been using it all week ahha). It MOSTLY works- much better than any OTC would help me. The other day though, I went to bed with 2 oxys and an ambien (very safe- doctor approved- my sleep schedule has been thrown off for some reason, part of it was from coughing my lungs out all night, but I don't know why I kept staying up after the cough got mostly better). and 4 hrs later I woke up in worse pain! Then I was up all night long (painless thanks to the oxy, but for some reason the ambien wore out).
If I press deep down on my skin, the muscle around my bone is VERY sensitive and it hurts to press down on it. It hurts from the top right side of my pelvic bone, across and down my groin area (sorry if that's TMI) and sometimes down my right thigh (on the front side) and SOMETIMES it extends to my right lowr back area. But it usually stays focused on that pelvic bone area!
I'm writing lots of asides in ( ) so I hope I'm making sense.
Anyway, the pain is so bad I can't concentrate. I'm really worried. The left side pain was the same for years and years before anything was found on a scan. how long do I have to go t hrough this before any doctor SEES something? :,(
I see my NF doc on the 13th (or something like that) so I hope he can help me. BUT I DOUBT IT. Even if he, or my wonderful primary care doctor were to order an MRI , nothing would show up (I mean I just had a PET/CT in August which included that area) and I'd waste everybody's time (now that I'm in school, MYYY time is more valuable than theirs, I'll have to say. I can't afford time wasted until this semester is OVER).
I'm really freaking out because if this gets worse and worse, I 1) will have to be on something like oxycodone more regularly, and I don't know if doctors will let me! and 2) COMPS ARE IN MARCH and if I have a pain spell that particular weekend I AM SCREWED.
I thought this would be over after surgery- so much for THAT. Thankfully the area that ALMOST killed me with pain IS IN FACT GONE (I sometimes get a dull pain spell)
and the nerve damage pain I had from my surgery recovery has SO FAR disappeared- I haven't taken gabapentin in a week and I haven't felt any burning pins/needles sensation! I wonder if I can really stop that medication for good!
But blah to my right pelvis!
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