Skip to main content

First Blog

Thus beginneth my first blog with Blogspot. I am interested to see who will actually read/follow this blog, especially once I get it up and running.

While I will be writing about a lot of things, I will focus on my life with NF and my life as a stomach cancer survivor. I know I am not the only person in this country with NF or who has had stomach cancer, so I wanted to start this blog as an outlet in hopes to find other people out there who go through similar things.


Stay tuned for more musings and rantings. I rant a LOT. A LOT. 
 

Comments

  1. Hey Jen! First, good to see you on blogspot. I read your other entries about NF and all I can say is that I wish I knew WHAT to say. I know you "bitch" sometimes but you are still so positive despite everything you've been through and I love that about you!

    Just a note - do you know what design or font you're using for this blog? Because it's really hard to read :-/

    ReplyDelete

Post a Comment

Popular posts from this blog

On Saying Goodbye: Leaving Boston after 17 Years

Dear Boston and all the people who have been in our lives: Thank you for the (just shy of!) 17 Years! What a beautiful city this is. It was such a privilege to call Boston home. You were worst of times (cancer, other health issues, losing Chaucer and Dante, job losses/ unemployments on both ends) but you were mostly the best of times (meeting the best people, having Oliver, completing advanced degrees, advancing in our careers, growing as people). You quite literally saved my life.. While some memories are quite triggering, they are reminders of strength and perseverance. And I am filled with thanks having been in the right place at the right time . Now here comes a waterfall of photos   Us in our early days here, circa 2008 Our graduations from Boston College in 2012 and 13 respectively  (I was pregnant and didn’t yet know in this pic!) Oliver’s birth in 2014 When i first moved here, I was not city savvy. I was not public transit savvy. And I HATED the cold and snow.  17...

Can I get a break? I guess not.

I guess it was the end of April since I last posted. Something like that. Well since then I've finished classes for the semester, and while I should be stress free, I am even more stressed. FML. I believe I mentioned in my last entry that I saw my PCP and she wanted me to have an endoscopy/colonoscopy soon but I didn't go into details why: because  at least for the endoscopy order, I still have troubles swallowing and my heartburn is bad (I also just need to have my yearly cancer check), but as for the colonoscopy order, she thought perhaps I grew colon polyps, which is why I am so anemic. She wanted me to get it done ASAP, but with final papers/exams, plus the hub leaving for most of June PLUS my surgeon not being free til July, I booked my appointment in July. Well on Monday I had a fellow up with my PCP and she wasn't really happy with me waiting til July. She worked some magic and I had my procedure done today-- with my gastroenterologist- I'm still mad at him f...

NF and Pregnancy- Things to Know!

Hello to my few but loyal readers. This blog will be long but worth it if you are thinking of having a baby and not quite sure what to expect. Well, at least I hope it's worth it! Please note- most of this stems from MY experience- I do not claim to be the voice of all pregnant women with NF. For those who follow me on Facebook you have been following my pregnancy. To the few who just catch my blog between entries- well, I'm pregnant! And it's a BOY! I actually knew when I wrote my last blog about the wellness group (back in July) but I was waiting until I was 13 weeks before saying anything. All is well so far. Here are my ultrasound pictures to date: (note- the ONLY good thing about being high risk is the # of ultrasounds haha) 6 Weeks! 11 weeks! 13 weeks! 20 weeks, 3D image of his cute face! 24 weeks! For those who do not know, when a parent has NF, there is a 50% chance to pass that gene to their children. I've known and understoo...