Just got my path report in the mail as promised.
I love pathology language.
First of all, I love how it begins with this:
Study of Indication: Left retroperitoneal mass on previous MRI for characterization.
-- I was not told about this in September as I said in my video in my last entry. I can't believe I was WITHHELD information. I was only told about my LIVER. Can't wait to bitch to my gastroenterlogist!!
Findings:
There is a left retroperitoneal lesion measuring approximately 3.7 cm in craniocaudal and 2.4 cm in transverse dimensions, with an oval morphology. It lies parallel to the psoas muscle. [then it goes on to explain in scientific terms how the tumor lit up in different lights/magnetic intensities]. There are two smaller lesions, one in the right rectus muscle (5:15) measuring 12 mm and the other in the right lateral abdominal wall measuring 5 mm (5:12). Findings are highly suggestive of multiple nerve sheath tumors. Clinical investigation for neurofibromatosis is recommended.
Looked up the psoas muscle, here it is:
It's SO good to know why I've been in so much pain there. I'm not psycho! I really thought I was to a certain point. I thought maybe I just couldn't handle 'girly monthly pains' that EVERY woman deals with. I always thought these pains had to do with my ovaries (which is obvious the pains aren't there now!) and was getting no help. I was therefore about to "fire" my gynecologist for being dismissive and negligent. No wonder why she was dismissive- it wasn't in her area of expertise! Answers are good,even if it's not a nice answer!
My pains pretty much span for that ENTIRE muscle. Actually, I am in pain now! A Lot. On a scale form 1-10 I'd say I'm at 15. That's about how I normally feel when this pain happens. It feels like a grinding, burning,shredding, pulsating (all at once) pain. And the more pain I am in, the more my bladder and rectum are affected when I need to go to the bathroom. Here's to hoping I can see my neurologist before December! I should be able to get my MRI image to him in March during my spring break.
So I leave you with a woe is me "owie".
I love pathology language.
First of all, I love how it begins with this:
Study of Indication: Left retroperitoneal mass on previous MRI for characterization.
-- I was not told about this in September as I said in my video in my last entry. I can't believe I was WITHHELD information. I was only told about my LIVER. Can't wait to bitch to my gastroenterlogist!!
Findings:
There is a left retroperitoneal lesion measuring approximately 3.7 cm in craniocaudal and 2.4 cm in transverse dimensions, with an oval morphology. It lies parallel to the psoas muscle. [then it goes on to explain in scientific terms how the tumor lit up in different lights/magnetic intensities]. There are two smaller lesions, one in the right rectus muscle (5:15) measuring 12 mm and the other in the right lateral abdominal wall measuring 5 mm (5:12). Findings are highly suggestive of multiple nerve sheath tumors. Clinical investigation for neurofibromatosis is recommended.
Looked up the psoas muscle, here it is:
My pains pretty much span for that ENTIRE muscle. Actually, I am in pain now! A Lot. On a scale form 1-10 I'd say I'm at 15. That's about how I normally feel when this pain happens. It feels like a grinding, burning,shredding, pulsating (all at once) pain. And the more pain I am in, the more my bladder and rectum are affected when I need to go to the bathroom. Here's to hoping I can see my neurologist before December! I should be able to get my MRI image to him in March during my spring break.
So I leave you with a woe is me "owie".
Hi Jen! I saw that you were following my blog and it led me to yours. I am so sorry to read that you are in so much pain. I do hope that this can lead to a doctor who is very thorough with you and helps to look at everything keeping you informed. I also hope that there will be a solution to make the pain go away soon ((BIG HUGS))
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