Skip to main content

The people who support me keep me going

This is just a small post to thank everybody for their support of me. Without a wonderful husband who rubs my pains away, without my friend Liz who is running her second Cupid's Undie Run on behalf of me (and who also kept my husband company while I was in surgery last August), and if it weren't for my good doctors and my friends and of course my FAMILY who weren't there for me, I don't know what I would do. I am constantly grateful for your support- you listening to my whining, etc etc.

I see my new obgyn soon (the 18th) who will hopefully shed some light/insight on my ilio-inguinal pain and how I can deal with it.  I am positive this started slowly with the NF tumor near or on my genito-femoral nerve, and then got worse with surgery. I'll see. At least I have a new pain doctor who wants to help me through this too.

Anyway, if you were brought here from Liz's link on her donation page, feel free to ask me any questions! Take care, much love!

Comments

  1. TaraJanuary 10, 2012 at 9:51 AM

    um how had I never heard of this run before?! I wish there was one in like Charlotte, I'd totally do it! lol (atlanta isn't that far buuut...too far to go for a little run like this, haha)

    ReplyDelete

Post a Comment

Popular posts from this blog

On Saying Goodbye: Leaving Boston after 17 Years

Dear Boston and all the people who have been in our lives: Thank you for the (just shy of!) 17 Years! What a beautiful city this is. It was such a privilege to call Boston home. You were worst of times (cancer, other health issues, losing Chaucer and Dante, job losses/ unemployments on both ends) but you were mostly the best of times (meeting the best people, having Oliver, completing advanced degrees, advancing in our careers, growing as people). You quite literally saved my life.. While some memories are quite triggering, they are reminders of strength and perseverance. And I am filled with thanks having been in the right place at the right time . Now here comes a waterfall of photos   Us in our early days here, circa 2008 Our graduations from Boston College in 2012 and 13 respectively  (I was pregnant and didn’t yet know in this pic!) Oliver’s birth in 2014 When i first moved here, I was not city savvy. I was not public transit savvy. And I HATED the cold and snow.  17 years later a
Post a Comment
Read more

Pain Management and How Much I Hate My Gastroenterologist.

So I finally met my pain management team today. The "team" consists of a pain psychologist and a pain physiologist. The appointment was set up a few months ago and it was great to finally see them today. Pain psychologist is really nice but WAY too touchy feely for me- don't know how to explain it but maybe it's just jarring to have a doctor other than my primary care doctor to actually react to the pain I've been describing. I've felt like I've been psychotic all these years. i'm finally vindicated. Well, I felt vindicated when I wrote my first entries of this blog. But YEAH. Anyway I need pain management because the pain comes and goes at random times and stays for ranodm amounts of time and the pain is intense... I mean really intense.I've been in a 'spat' for the last few days, so I'm happy I actually saw the pain doctor when I felt the pain- I usually see my doctors before the pain starts or after a bad spat. Never during. so hu
2 comments
Read more

And my sutured stomach has slipped...

I haven't written an update post in FOREVER. I've just had no time. Between school work, studying for Comps and more school work and applying for jobs...yeah. Now that school work is dwindling, my comps are over (and I passed!), I can write this long overdue blog about my GD esophagus.Not NF related, sure, but I am perpetually recovering from stomach cancer surgery, so yeah. Anyway, I've had problem swallowing since maybe February. Well, ha, I've had problems swallowing since my damn cancer surgery, but it got worse. So did my heartburn. I was worried. So I had an endoscopy in the beginning of March. This photo below is BASICALLY what I had done in 2009- after part of my stomach/esophagus/GE junction were removed, they fundoplicated it back together: It's not exactly like this because in this photo, the IN TACT stomach was wrapped against an IN TACT junction/esophagus. They took what was left of my stomach and wrapped it around what was left of my esophagu
3 comments
Read more